Over the last two years I had been working along the side of a group of people that have Usher syndrome from all over the US and Mexico. We all wanted to create a book full of our stories with living with Usher syndrome. We wanted the book to be used as a resource and inspiration for others. In December 2016 our dream came true and the book was published!! It has been crazy seeing my name and picture in a published book. Chapter 22 is all mine! :) I have been working on promoting our book in Washington, Oregon and Idaho.
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